Tuesday, May 22, 2012

New changes in LWT13

We are expanding!!

Living With Trisomy 13 is now AN OUTREACH FOR TRISOMY AND OTHER RARE DIAGNOSES.
We are expanding to encompass a larger group of families. There are many families out there with a diagnosis similar to Trisomy 13. These families to have now where to turn and need hope, courage and inspiration. Come visit our site www.livingwithtri13.org and see our albums. If you are a parent or family member facing a difficult rare diagnosis, have an encouraging story of hope, or a treasure memory story to share please contact me Vanessa@livingwithtri13.org.

I would also like to give a very warm welcome to our newest board member Robin Martin. Robin will be joining our organization as the Director of Administrative Services. 

Take care and God bless
Vanessa Hernandez
Executive Director
Living With Trisomy 13
An outreach for trisomy and other rare diagnoses

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