Grieving mother plans fundraiser
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An inspirational young mother has the biggest bands in Milton Keynes rallying around her to raise funds for the specialist nurses who enabled her to take her ‘angel’ home to die.
Baby Emily Elizabeth was given just four days to live after she was born with a genetic syndrome, Trisomy 18, that went undetected during pregnancy.
But despite the odds tiny Emily, who weighed just 4lb 5oz when she was born, lived for 26 precious days.
She said: “Edwards, or Trisomy 18, is the second most common syndrome after Down’s Syndrome but if you ask people if they’ve ever heard of it they say ‘no’. If you ask if they’ve heard of Down’s Syndrome they say ‘yes’."
“I thought I was walking alone but setting up Emily’s Star has put me in contact with other people who have gone through the same as I have."
“Emily’s Star has helped Emily to live on but it’s also helped me a
lot.”
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