Inpatient Hospital Care of Children With Trisomy 13 and Trisomy 18 in the United States
*** Concluding statement of 12-year American major national study of interventions on children with trisomy 13 and 18:
"Because we are currently unable to identify which children might be long-term survivors, universal application of the term lethal to the diagnosis of trisomy 13 and 18 is not appropriate."
Well.. just last week my son.. now 17.. soon 18.. and although Intellectually delayed..very short..some deformities.. but has gone from 2lbs to his now 130 lbs..
ReplyDeletehas been mainstreamed in school from 1rst through current (10th)... just this past summer has proven problematic... severely so
He is currently in a child psychiatric treatment center going to school (10th) and getting some help with severe mood disorders... but he survives! He is a rare gift from God to us.
His name is Luke
oh forgot to add.. on 4/12/2012 at the Universtity of VA Hospital genetics lab was diagnosed with Mosaic Trisomy 13...
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