Trisomy - Babies Born With Congenital Anomalies Enrich Families
Trisomy 13, Trisomy 18 Babies Born With Congenital
Anomalies Reportedly Enrich Families
HUFFPOST Living
An ethicist who was not involved in the study says the findings point to
a need to change the messages given to parents-to-be and new parents
facing the reality of a baby with T13 or T18, as the conditions are
called for short.
"This study should have us stop and think about what decisions, for
which children, have been made on the basis of misinformation," says
Francoise Baylis, a professor of bioethics and philosophy at Dalhousie
University in Halifax.
"The negative narrative needs to change. Parents' experiential knowledge
matters and should be available to expectant parents and new parents."
The study, by ethicists and the mother of a child born with Trisomy 13,
is published in this week's issue of the journal Pediatrics. READ MORE
